Online Encyclopedia for Genetic Epidemiology Studies

ALSPAC Study Protocols. Aims and Study Design: “The UK ALSPAC study covers a wide range of systems in babies, children, mothers and their families, children followed through from birth to post-puberty. AIMS and STUDY DESIGN (Protocol version 7.0) contains: Historical background and study aims * Study Design * Parental involvement and questionnaire dministration * Biological Samples * Medical records * Children in Focus * Studies on other sub-populations * Plans for current and future data collection * Outcome measures * Exposures * Statistical power” - http://www.alspac.bris.ac.uk/protocol/default.shtml
Asthma: “Epidemiological Study of the Genetics and Environment of Asthma, Bronchial Hyperresponsiveness, and Atopy: Phenotype Issues. AJRCCM 1997. The protocol included standardized questionnaires, bronchial responsiveness, allergen skin-prick tests according to international protocols, total serum immunoglobulin E (IgE) level measurements, and blood eosinophilia. Criteria used to select subjects with asthma and determine asthma status of relatives for affected sibling pair linkage analysis are described.” - http://ajrccm.atsjournals.org/cgi/content/full/156/4/S123
Body mass, height and sitting height: “Body mass, height and sitting height, detailed instructions from Ross WD, Marfell-Jones MJ. Kinanthropometry. In MacDougall JD, Wenger HA, Green HJ, eds. Physiological Testing of the High-Performance Athlete, pp 223-308. Champaign, Illinois: Human Kinetics Books, 1991.” - http://athena.usask.ca/growthutility/ms.doc
Disease Coding - ICD-9 2006: “Free online searchable 2006 ICD-9-CM and Medical Terminology Dictionary” - http://icd9cm.chrisendres.com/index.php?action=child&recordid=2334
Glasgow ECG Core Lab - Computer Assisted Reporting: “Available software. Accept ECGs in both electronic and paper format directly from trial sites and manage database storage and retrieval systems for both types. This assists in the determination of end points and allows (serial) comparison of ECGs. Provide Minnesota coding (the internationally agreed standard for epidemiological studies and clinical trials) for both electronic and paper copy ECGs.Assist with studies in related fields such as Holter (24 hour tape) analysis” - http://www.gla.ac.uk/departments/medicalcardiology/care/services.html
Guidelines On Studies In Environmental Epidemiology: “This report contains the collective views of an international group of experts and does not necessarily represent the decisions or the stated policy of the United Nations Environment Programme, the International Labour Organisation, or the World Health Organization. Published under the joint sponsorship of the United Nations Environment Programme, the International Labour Organisation, and the World Health Organization World Health Orgnization Geneva, 1983 The International Programme on Chemical Safety (IPCS) is a joint venture of the United Nations Environment Programme, the International Labour Organisation, and the World Health Organization. The main objective of the IPCS is to carry out and disseminate evaluations of the effects of chemicals on human health and the quality of the environment.” - http://www.inchem.org/documents/ehc/ehc/ehc27.htm
MONICA (WHO) Manuals - protocols, standardisation: “Part I: Description and organization of the WHO MONICA Project Section 1: Objectives and outline protocol Section 2: Organization and management of the WHO MONICA Project Appendix 1: MONICA Centres, sites and responsible persons Appendix 2: MONICA Collaborating Centres and Reporting Units Part II: Annual Statistics Section 1: Population demographics and mortality data component Section 2: Health services data component Part III: Population survey Section 1: Population survey data component Section 2: Standardization of lipid measurements Section 3: Standardization of thiocyanate measurements Part IV: Event registration Section 1: Coronary event registration data component Section 2: Stroke event registration data component Section 3: Event registration quality assurance methods Section 4: ECG coding quality assurance methods Part V: Data transfer and analysis Section 1: Data transfer to the MONICA Data Centre” - http://www.ktl.fi/publications/monica/manual/
Recommendations for Blood Pressure Measurement AHA 2004: “Detailed 13 page review in the journal Hypertension, on all aspects of blood pressure measurement. Article freely available on Web.” - http://hyper.ahajournals.org/cgi/content/full/45/1/142
Sampling methods for blood and urine: inflammatory biomarkers relevant to the airways: “This AJRCCM 2000 article explores the use of biomarkers in peripheral blood and in urine as possible indirect measures to study airway inflammation. In particular, the article focuses on the use of biomarkers, especially the use of eosinophil granule proteins in the blood and urine of children with asthma/wheezy bronchitis and cystic fibrosis, in comparison with healthy subjects.” - http://ajrccm.atsjournals.org/cgi/content/full/162/2/S1/S31

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